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The
entire family is affected when a child or a family member has a
life-threatening or chronic illness. The information that our patients
and their families obtain increases their ability to make decisions
and provides them with a sense of control over their diagnosis and
treatment. Our behavioral health team members provide support services
that offer answers to your questions, concerns, and comments.
Child
Life Services
The
Child Life Program is designed to help
meet the unique emotional and developmental needs of the children
and teenagers. Therapeutic interventions such as medical play, procedural
preparation, developmentally appropriate education, therapeutic
recreation, music therapy, and procedural accompaniment are all
implemented to help reduce the fear and anxiety of our patients,
and to promote self-expression and peer interaction. To help normalize
the medical environment, birthdays and holidays are celebrated continually
throughout the year.
The
Child Life Program is centered in our Playroom. Patients, siblings
and parents are always welcome to partake in therapeutic activities.
As the Playroom is a safe haven for our patients, medical procedures
are not performed in the Playroom. It is a place where children
and teenagers can have fun, and not feel threatened by the medical
environment.
As children and teenagers often receive treatment in the clinic area,
Child Life also provides activities and interventions in the clinic.
One-on-one therapeutic activities are provided, as well as movies
and portable CD players. In addition, patients can play Nintendo
games provided by the Child Life Program. Special visitors such
as clowns, magicians and singers are at Hassenfeld on a regular
basis to provide additional diversion and laughter.
When
your teenager or child is medically cleared, our School Re-Entry
Program eases the transition between home tutoring and going back
to school. Visits to the school can be arranged to meet with administrators,
teachers, school nurses and the returning child's class to answer
questions, provide information and dispel any misconceptions which
may still exist.
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Psychological
Services
Evaluation
Services:
Psychological screenings at the point of initial diagnosis, and
periodic reevaluations during the course of the treatment, are a
component of comprehensive medical treatment. A neuropsychologist,
a senior psychologist, post-doctoral fellows and pre-doctoral interns
participate in providing neuropsychological /psychological/and educational
tests to assess patients' functioning and determine their needs.
Neuropsychological
examinations are clinically indicated and medically necessary when
patients display signs and symptoms of intellectual compromise,
cognitive and/or neurobehavioral dysfunction that involve, but are
not restricted to, memory deficits, language disorders, learning
disabilities, developmental disabilities, pervasive developmental
disorders, impairment of organization and planning, difficulty with
cognition, and perceptual abnormalities.
Thorough evaluations
seek to identify areas of cognitive strength as well as deficits
that may have arisen because of their disease and treatment. The
results of each evaluation are subsequently explained to the parents
of the patient as well as the child or adolescent when developmentally
appropriate. The informing session is followed by a written report
which documents the patient's performance and test scores, concluding
with a series of recommendations for both school and home.
Cognitive
Remediation Services:
The Hassenfeld
Center on the NYU campus provides cognitive remediation services
for school aged patient's who are displaying attention and concentration
problems in school that may be a consequence of their disease and
treatment. A referral to the cognitive remediation program provides
a neuropsychological screening as a baseline assessment and if the
patient is found to be an appropriate candidate, will be enrolled
in weekly, individual cognitive remediation sessions for twenty
sessions of one hour in duration each week following a structured
protocol for enhancing both visual and auditory attention and concentration.
The program concludes with a post treatment evaluation to closely
monitor the patient's progress.
Early Intervention
Services:
The Hassenfeld
Center also provides an early childhood intervention program for
patients of preschool and Kindergarten age (2 years old to 5 years
old) by addressing possible speech and language delays as well as
any fine motor delays that a child may experience during their treatment.
School Liason
Program Services:
A School
Liason Program has been established to assist each patient with
their transition back to school once their treatment has concluded
or been changed to enable them to return to a classroom setting.
The program can provide an array of services ranging from individual
counseling to class presentations and meetings with school personnel.
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Preparing
for Test and Treatments
Educating
a child about tests or procedures can help eliminate some anxiety.
It is important to remember to provide a child with age-appropriate
information. It may be helpful to inform a pre-schooler about procedures
shortly before they occur. Utilize the child's words and explanations
and encourage them to voice concerns or questions. It is important
to reiterate that the child is not being punished or penalized by
the procedure. Explain that the test or medicine is working to try
to make them better. You should tell the child that it is okay to
cry, or say ouch, but that the nurse or doctor will need the child's
help to hold still. Older children may benefit from education in
the form of literature discussions
There are some things that a child can do to stay calm, and possibly
relieve some pain:
Hold someone's hand tightly.
Say "ouch" loudly when something hurts.
Count 'one, two, three' before a shot.
Take deep breaths and exhale when the needle goes in.
Think good thoughts.
Cry if needed.
Learn relaxation techniques: It is not uncommon for a child
to be upset about receiving treatment. He/she may have physical
discomfort associated with treatments, for example, nausea. Your
child may benefit from learning ways to relax. This training teaches
your child techniques to relax his/her body in order to decrease
his/her physical discomfort as well as use them as distraction during
uncomfortable procedures. Relaxation training is tailored to each
individual and his/her specific needs.
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Psychotherapeutic
Services
Individual/Family/Group
Psychotherapy and Support Groups:
Parents,
patients, and siblings can benefit from discussing and learning
to manage behaviors and emotions. Addressing their concerns and
dispelling misconceptions about the illness and its treatment will
improve the quality of the daily life of patients and their families.
Individual meetings with the patients and their caregiver should
be the initial approach, followed by and/or concomittant with group
activities.
Psychoeducational
groups and seminars for parents/caregivers on pediatric services:
Support
groups are held for the caregivers, patients, or siblings offer
individuals a venue to ask questions as well as give and receive
support around issues related to adjustment to illness. In a child-focused
practice, children benefit from the opportunity to meet each other
in a social and therapeutic setting so they can discuss shared concerns,
receive education, and socialize. Additionally, opportunities for
caregivers to speak with others whose child has a similar diagnosis
is also be facilitated. In-service programs and guest speakers include
nutritionists, parents of survivors, young adult survivors, and
siblings of survivors.
Multidisciplinary
Treatment planning: with specific goals /objectives and periodic
reviews to monitor progress: recommendations include: child life
medical play interventions/recreation and/or music therapy; more
comprehensive assessments (via neuropsychological consultations
in-house and/or referral to Board of Education; individual/family
counseling)
Bilingual
patients:
The psychological functioning of the bilingual patient requires
additional interventions, as language is an organizer of cognitive
/ affective experiences, it mediates experiences of expression/repression/dissociation
related to illness and treatment.
Usually, issues related to bilingualism also connect to level of
acculturation and immigration issues of each family (immigration
stress/cultural identity/inability to communicate, adaptation to
changes in socioeconomic standing/loss , mourning). These impact
effective communication, access and adherence to medical treatment.
Crisis
Intervention: Upon initial diagnosis or throughout the duration
of treatment, there will be heightened episodes of anxiety or concern.
The team at Hassenfeld can introduce supportive counseling techniques
which can be utilized.
Psychiatric medication consultations
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Additional
Services
Facing
the reality of your child's new diagnosis can often be emotionally
taxing and financially overwhelming. Family members will be faced
with a host of issues concerning the costs of treatment. Based on
each family's insurance, different resources may be provided to
patients to assist with potential concerns. We can help arrange
for services and provide referrals when necessary. The behavioral
health team is available for the following services (to be determined
on individual basis):
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Financial
Counseling
Facing the reality of your childs new diagnosis can often
be emotionally taxing and financially overwhelming. Family members
will be faced with a host of issues concerning the costs of treatment.
Based on each familys insurance, different resources may be
provided to patients to assist with potential concerns. We can help
arrange for services and provide referrals when necessary. The behavioral
health team is available for the following services (to be determined
on individual basis):
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